Category Archives: Blog

Stories I want to share along the way …

October 4, 2011

Good things come to those who wait…

I have been waiting for 26.2 for the last 25 years…bring it Chicago! bring it!

The countdown begins, I wake up telling myself I can do this! and I will!

For everyone that has been emailing or reaching out to me this week, THANK YOU!  this is a team effort and I have everyone who believes in me running on Sunday!

October 1, 2011

Friends and believing in myself!

Marathon training has been a journey, many ups and many downs.  But my cheering squad has helped me throughout my training.  Every mile, every step I have to think about – land my foot properly, don’t over exert yourself, don’t aggravate your Dystonia.  What many often don’t know is that every step is a conscious thought..next week I will run my longest run yet 6 hours…and today I woke up with some foot pain and some knee pain but I am so close I can see the finish line.  I decided that this morning will be my last run and I know I can do this next week.

I want to thank every text, email, post on this blog, wall message on my Facebook – I couldn’t have done this without any of you.  You all reading this have no idea how you have made me the runner I am today and the marathon star I will become.  I joke and say I will wear my medal for a week…but I probably will.  10 years ago when I wrote in my bschool essay that it will be a miracle if I ever have the chance to run a marathon…well that miracle is very close and this blog is just to thank everyone who has given me love and support on this journey.

Thank you!

My video of the week…

September 26, 2011

Run Carrie Run!

With less than 2 weeks away, I am going to publicly admit I am nervous.  I know I am going to try and do my best and I want my best to be 26.2.  The most mileage I have done has been 17 miles but I know I am strong enough to get it completed.  I do know at this point I need love, support and words of encouragement.  My analytical mind is telling me I am iffy on finishing and my dreamer mind is telling me I can do it.  I am not great at asking for help…but I will now, please send me all your kind words during the next 2 weeks to help me realize I can and I will get my 26.2 medal.

Thanks!!!

 

September 18, 2011

3 weeks away…2 more training sundays then 26.2

I can do it!  Mind over legs :)  Today I ran 16.25 miles and I am not going to lie, it wasn’t easy…there were hills, there were rocks and there were stairs…but I did it…for a period of time I thought I couldn’t do it but after I started telling myself I can, I cranked out 16 miles…the marathon is all about doing my best and believing in myself…I am still training for the next 2 weeks, still believing and keep on telling myself, that no matter the outcome this has been a journey well traveled and that I am running miles that most of my “normal” friends don’t even run.  

Here is an awesome pic from today’s run – a carrie smile, a run on the golden gate bridge and a perfect sunny day. In a nutshell – an almost perfect run!

Please don’t forget to donate!

http://www.rsvpbook.com/event.php?460916

September 4, 2011

Changes…

On my run this morning I had lots to think about.  The season is changing, my zip code is changing by 2000 miles and everyday my gait changes.  The only thing constant in life is change…This is one of the mantras I remind myself everyday…Running for a person with Dystonia is quite challenging, everyday is a new surprise on how my feet will land on the pavement.  I never know what tomorrow’s run is going to be; today was no different.  I woke up at 5am to beat the South Florida heat and today’s 7 miles was more challenging than the 16 I did 2 weeks ago.  I didn’t get frustrated, I took today’s situation in stride.  I tried my best and did what I could squeeze out.  I am so thrilled to be running the Chicago marathon in October 9th…I am excited, scared and I know whatever happens I gave it my best!  Some of us are meant to be runners, some of us take the miracle of science and sheer determination to make it happen.  The next 30 days will be alot of running – in a new city, a new temperature but I know whatever happens…change is inevitable, somedays my feet will help me, somedays my feet will need a break…Each day brings a new surprise and however my gait changes, I know that change is constant and my dream to run a marathon will one day come true!!!

Please help me find a cure for Dystonia by donating whatever you can to support me on my run!

http://www.rsvpbook.com/event.php?460916

August 21, 2011

Wow. Miracles. Dystonia, Wheelchairs. Glitter

I run because I can.  I woke up this morning thinking I may not be able to do the 15 miles I committed to do.  But I got over that quickly and ran/walked 16.2 miles!!!!  I knew I would be able to run today because of all the children I met yesterday with Dystonia.  Kids that you would never think have Dystonia to those whose bodies were so tightly wound up I am not sure how they ever get the chance to feel relaxed.  Yesterday, I met the cutest little girl (6-8 years old) whose Dystonia was so bad she was in a wheelchair, has limited use of her arms and could barely speak, but she had swag!  Swag you say?  Absolutely, check out her shoes below!

Her shoes were silver lacings, rhinestones on the front of her shoe and glitter on the petals of the flower.  Her smile was so infectious.  Her mom was the sweetest person ever, helping decipher what her daughter was trying to tell me.  After I told her what I was doing, she said “hug”?  I fell in love…I knew this morning when I laced up for today’s run, it wasn’t about me, it was for every child or adult that has dystonia to help find a cure!

Please help fund research and donate to this wonderful cause..and if you donate today a wonderful donor will match all funds raised!

http://www.rsvpbook.com/event.php?460916

 

August 16, 2011

Don’t Stop Believing….5 years ago…if only…5 years later…I CAN!

My inspiring song of the day…

As I am in full on training mode, I am also trying to figure out the science on hydration and nutrition…it is all new to me since I never thought I would be full on marathon training.  I am learning that training is all about the mind, the legs and the fuel to go on….as well as the people that are cheering you on.  I am on track a little behind but my goal is to finish in the time it took me to have brain surgery….around 6 hours!  I am not pushing, I am definitely slow and steady but I have finally figured out what to think about when I am running.  My highs/my lows in life and then when I think I can’t go on  April 4, 2006…the day that changed my life the day I did believe that something great was going to happen.  I am as optimistic as the day I had surgery that I am going to cross this finish line and if I don’t there will be others and I will never stop believing or running!

Please help support me as I run to raise funds for Dystonia research!

http://www.rsvpbook.com/event.php?460916

August 14, 2011

Dogs Days Are Over….Chicago Marathon here I come!

This week’s kick Carrie’s butt song…..

This weekend I did 13 miles!  The first 10 miles were great…good music, and every time I thought I was tired I kept on thinking about my sister training, my legs finally being one with the ground and being at peace with my Dystonia.  The lake as always was amazing, I passed one of my favorite Equinox instructors Julie, paced myself with these 2 older women and smiled at anyone who let me smile at them.  I always wondered what to think about for such a long run and yesterday it wasn’t too hard…great friends, the dougie (the dance), my sister training for her 5k, wheelchairs, my brain surgery and finally reminding myself that I should try and do the marathon in the time it took for my first brain surgery – 6 hours.

I couldn’t run this without medical research, without those who spend all their time searching for cures for Dystonia and in return, I run for those that tirelessly work to help find a cure!

Please donate anything you can to help…

http://www.rsvpbook.com/event.php?460916

August 7, 2011

It’s not the destination, it truly is the journey!

Yesterday was one of the best physical days I have had.  I completed 10 miles.  I did it through the Jeff Galloway method…I ran 3 minutes and I walked a minute.  I adapted, I don’t need to train the way everyone else is, I am not everyone else.  I am a Dystonia patient, who with the use of wires and stimulators and a lot of drive and stubborness will never let the disease take the best of her.  I cried on mile 6.  Not tears of pain but tears of joy.  I still dont believe it some days.  I had to pause and  walk…I couldn’t let that moment pass me by.

I also then thought of my sister who reached a major milestone and walked 2.5 miles yesterday – something not so easy for her…to be honest some days not so easy for me…but every step is one more step I have in me and one step we all have in ourselves.  One of the lessons I have learned with my sister this week is that once she decided that she had the will to do it, she did! We all have to remember that we can try and beat the disease! Some days it seems impossible, but never give up there is always tomorrow.  When there are moments your mind tells you to give up, dig deep, find your heart and soul and all of a sudden you will be 2 more miles further.  The hardest part is often getting up for the run but when I get to the lake and see such diversity – wheelchair racers, women and men in their 70s, people you can tell have their personal demons, I get excited.  Yet, we all smile to each other and acknowledge we are on the same journey.

Enjoy the journey!  I am, not pushing myself, but digging deep.  I am training for the Chicago marathon, not sure how much I am going to complete, but I will still cry and I will still be thankful of how lucky I am!

July 19, 2011

Running for Dystonia.  Running with Dystonia.

I am beyond excited to start training for the marathon (even though I am only planning to do about 13-15 miles).  For the first week in a long time, I feel great.  Its been awhile  quite frankly that I have felt this great…since last summer I sustained 2 stress fractures, a broken foot and some minor battery issues.  Last Saturday marks my come back.  I am running again, doing my pilates and getting my strength training in as well.   I learned a lesson from the last year.  I have limitations and instead of ignoring them, I am working within the parameters of my Dystonia. I run. I run/walk.  I pace at 13 minutes.  I have 4 miles to run tomorrow.  I will do my tempo drills.  I will do it at my pace.

Last new year’s my friend Carolyne said to me I had no idea how hard it is for you to run.  I said it is, running for me isn’t about floating in the air and becoming one with the road…it is about thinking about every step and reminding myself to make sure my right foot does invert on the landing.    But it is also about thinking about every child that is in a wheelchair and that can’t run.  I am happy to spread the word about Dystonia through my running.  I would love a child, teenage or young adult to read this website and be inspired to lace up and walk or run or whatever get on a spin bike and ride….It is not about 26.2, it is not about winning, it is about doing your personal best.

New Year’s Eve, I felt bad Carolyne who paces sub 9 was running with me at 12+ pace and I kept on saying to her “I am sorry”….I have left that guilt in 2010…There is nothing to be sorry about; quite the opposite…She looked at me and said it is my honor to run with you my friend.  My friends are my source of energy and who make me want to get across that finish line…Be inspired, take your friend’s hand, and do the best you can do!