Dystonia…What does it mean to me?
I spend so much of my time writing about running and be physically fit, that I don’t think I have ever thought about what is Dystonia, other than the clinical definition that you can find on Wikipedia. Many don’t know that I suffer from a disease thankfully because of Medtronic and their amazing technology for the Dystonia. But DBS is not a cure. It is a temporary solution to a problem. Dystonia means many things to me depending on the day, the weather, how I feel but I do know I think of my disease as a set of rolling hills. I own the disease. I refuse to let the disease define me. There will be great days and there may be bad days…that’s life. Dystonia has helped me become stronger and be a fighter….I sometimes think its the reason for my success. The reason I work so hard. So despite the bad days, I try and not feel bad but remember the bad days when I am on a 10 mile run and smile for 2 hours on that run. The ground, the feeling of my feet on the ground, I love it all and I know the Dystonia makes those runs make me feel like the luckiest girl in the world. Dystonia is not my crutch, Dystonia is my reason for enjoying life.