April 27, 2011

Dystonia…What does it mean to me?

I spend so much of my time writing about running and be physically fit, that I don’t think  I have ever thought about what is Dystonia, other than the clinical definition that you can find on Wikipedia. Many don’t know that I suffer from a disease thankfully because of Medtronic and their amazing technology for the Dystonia.  But DBS is not a cure.  It is a temporary solution to a problem.  Dystonia means many things to me depending on the day, the weather, how I feel but I do know I think of my disease as a set of rolling hills.  I own the disease.  I refuse to let the disease define me.  There will be great days and there may be bad days…that’s life.  Dystonia has helped me become stronger and be a fighter….I sometimes think its the reason for my success.  The reason I work so hard.   So despite the bad days, I try and not feel bad but remember the bad days when I am on a 10 mile run and smile for 2 hours on that run.  The ground, the feeling of my feet on the ground, I love it all and I know the Dystonia makes those runs make me feel like the luckiest girl in the world.  Dystonia is not my crutch, Dystonia is my reason for enjoying life.

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One response to “April 27, 2011

  1. You have an amazing story and I am honored to have had the chance to read it. I almost felt like it was my story because mine is very similar to yours. I am proud to have you as a fellow fighter of dystonia.

    Stay Strong & God Bless

    Donnie

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