Someone once told me everytime you fall, you become stronger.  I have to say that’s not necessarily true for a Dystonia patient.  Everytime you fall you think – is my battery dying? is my Dystonia getting worse?  Will my loved one still want to be in this game with me….Welcome to Dystonia 101!

I have to say I look at my medals every night before I go to bed, they remind me how strong I am and then a day like today when I fall in front of colleagues and start to cry reminds me that I am still a Dystonia patient.  I have to remind myself it is okay to cry, it is okay to be a little angry, but it is not okay to wallow in self pity.

My pity party ends at 12:01, new day, new smile!


4 thoughts on “

  1. Hey Carrie –
    I don’t know if you will remember me, but we went to UNC together our freshman year. I left Chapel Hill for Miami with a baby on the way. (That baby is now 17!)

    Out of the blue, you came to mind today.
    So…naturally…I did a Google search on you and found your website.

    You have lived an amazing adventure, my friend.

    My dad was diagnosed with Parkinson’s seven years ago after several years of misdiagnosis – he’s young – just turned 60. I keep asking him about DBS and would love some real information that isn’t full of case study verbiage.

    Clearly, you live in the Bay Area somewhere – I’m in Walnut Creek and would love to get reacquainted and hear about all of this crazy running you’ve been doing.

    p.s. so sorry for such a long comment – feel free to delete – i just wanted to get in touch with you!

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