Happy 8th Bday!
8 years ago today, my life changed. I felt like I was given life. I never looked back. I am still a baby by society standards…I have experienced wins and losses and still learning my way around able bodied life! I rarely look back, I never regret. I question sometimes when I feel the way I feel today. I question sometimes why the battery has to die when it does. But all in all, I take the little bad with the overwhelming good. I have ran races, easy ones, tough ones, I have skied, snowboarded, paddleboarded, snorkeled. I have lived a full athletic normal life. I have hiked, I have travelled, I have lived and won’t stop living. I will continue to seek out adventure albeit safe ones and I will continue to take the good with the bad.
Over the last week 2 people sent me the video and I laughed and I cried when I watched it. I am always amazed when women like myself accept what they have been given and work within those challenges. Her line that spoke to me was so amazing – being disabled is part of being the biggest minority population out there….so I am learning every day to be okay with saying I am disabled even though you can’t see it and I am learning everyday to appreciate the good with the bad. But I have a gift and like Maysoon, I want to use this gift to inspire others to not give up.
So on this 8th birthday I have decided that I want to start dedicating more and more of my life about talking about living with Dystonia, living with a disability. This is nothing to be ashamed about but instead is just a part of who I am, no different from having black eyes. Fast forward a week from today and I will be entering the hospital getting ready for my new recharged battery and life, and I have never been so excited to have surgery!