I would like to thank my mother for always encouraging me to be me. We never talked about the Dystonia as a crutch but part of who I am – no different from having black hair or dark brown eyes. Because of the way I was raised, I always lived the mantra – Dystonia doesn’t run me; I run the Dystonia. It was just the way we lived in our house. I would say mom – I want to go to bschool and she would say which one? Do you have the right grades? GMAT score? At that point my dystonia was pretty bad, but who cared?
One of the most important lessons she did teach me was be patience in life. She taught me other things too- how to love, how to share, how to be honest and patience. She would always say and I still remember today –
Patience is a virtue; virtue is a grace and Grace is a little girl who doesn’t wash her face.
This has been one of the hardest virtues to practice daily. Life is full of challenges and setbacks and how you attack those setbacks is often an indicator of the type of person you are. Life unfolds. Things happen. You live all your life with Dystonia and then 4 weeks later after DBS you start walking again. I love the miracle of modern science. And I love my mom more for letting me make the decision to have DBS and be right there in the waiting room at 5am after surgery to come see me despite visiting hours starting at 8am. To all the moms reading this, love your children despite whatever challenges they have, be patient and proactive and let life unfold!