August 21, 2011

Wow. Miracles. Dystonia, Wheelchairs. Glitter

I run because I can.  I woke up this morning thinking I may not be able to do the 15 miles I committed to do.  But I got over that quickly and ran/walked 16.2 miles!!!!  I knew I would be able to run today because of all the children I met yesterday with Dystonia.  Kids that you would never think have Dystonia to those whose bodies were so tightly wound up I am not sure how they ever get the chance to feel relaxed.  Yesterday, I met the cutest little girl (6-8 years old) whose Dystonia was so bad she was in a wheelchair, has limited use of her arms and could barely speak, but she had swag!  Swag you say?  Absolutely, check out her shoes below!

Her shoes were silver lacings, rhinestones on the front of her shoe and glitter on the petals of the flower.  Her smile was so infectious.  Her mom was the sweetest person ever, helping decipher what her daughter was trying to tell me.  After I told her what I was doing, she said “hug”?  I fell in love…I knew this morning when I laced up for today’s run, it wasn’t about me, it was for every child or adult that has dystonia to help find a cure!

Please help fund research and donate to this wonderful cause..and if you donate today a wonderful donor will match all funds raised!



5 thoughts on “August 21, 2011

  1. I feel proud for you. Whatever you did for those kids is really remarkable. I hope some big sponsors group will soon donate for this wonderful cause. Thanks pretty much.

  2. Carrie – I am so proud of your accomplishment! i just might start training and do next year with you! What an inspiration you are, not only to me, but to all of the others out there with Dystonia and their families! You are helping make a difference and raise awareness! What a beautiful person you are and what a beautiful thing you are doing! RUN CARRIE RUN!!!!! I BELIEVE IN YOU!!!!!!!!!!!

  3. And I thought you were going to pack on Sunday. Great job on your long run! Very nice to meet you and look forward to talking when you’re on the west coast.

    Dena Sherry

  4. Hey Carrie, I’m also a runner with Dystonia, my case is minor but still makes it difficult to run and prone to injury. Good for you! You can do a marathon, you have the drive and desire.

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