Dystonia…
Do you all know that dystonia is the 3rd largest movement disorder disease in the US? 1st is Parkinson’s, then essential tremor and the Dystonia. I often wonder why is Dystonia so uncommon and someone once said because no one famous has ever come out and said I have Dystonia. It is frustrating because it is more common than we know. Today when I went to the pharmacy and asked the pharmacist if she can tell me which cold medicine won’t interfere with my Dystonia, she said What’s Dystonia? It can be frustrating sometimes…but I have taken the approach don’t get frustrated, get to educating. I no longer hide behind the Dystonia, I am working to be that famous person to be the face of Dystonia. To get out there and talk about it and then I remembered this video..
I was so vocal and so open and honest about it. I am excited of thinking about the many things I can do to spread the word next year… take snowboarding classes, complete a tri, be fit, be healthy and enjoy being active! I can’t be nothing short of excited to show the world what this terminator can do….and as I reflect I get excited about the next chapter in my life, to write the new chapter of sporty activities in my life!
So despite always shedding a tear of joy when I see this commercial, it takes a village…and between my spirit and seeing media ads such as these I am optimistic the world will learn more and more about Dystonia!
Run Carrie Run! 