February 2, 2014

One woman that did!

Today I participated in Cycle for Survival and due to low participation on my team I ended up cycling for 2 hours.  For those 2 hours I smiled in Jen’s memory, cycled harder and was grateful to be inspired by one woman that wanted to raise a cure for cancer.  She hasn’t stopped dancing in all of our souls and her legacy carries on annually at Equinox clubs worldwide.  By hour 2, I started thinking was this something I can do, could I Carrie Siu Butt take a disease and try to make it become more prominent, raise more awareness?  I think about this all the time, has Dystonia been my calling to help others? to inspire others?  A friend of mine told her daughter about me and she said see – Carrie is a miracle.  I am!  I have been through many life changes but the one thing that is constant is that Dystonia has been with me for 27 years of my life.  As I embark to celebrate my 8th year of DBS this year, I am thinking how to use my good fortune to spread the word – still through running, but is there more I can do? Write a book? Speak at engagements? I need to educate the future generations who may get this gene, that it is not a life sentence, it is not the end of who you are…but the beginning of a different journey…a special one…we are all special in our own way inside and out.  

To Jen, wherever you may be – I danced for you and with you today!  This world misses you but we are so happy to have you in our hearts at least once a year if not daily!

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