January 18th, 2015


Did my instructor just call me an athlete? But she knows I have Dystonia, she knows I can’t do it all…hell yeah she called me an athlete!

I am an athlete. I lace up about 7-9x a week and do something good for myself.  I go to bootcamp, I go spinning, I go running, I do Pilates, I go boxing, I go to yoga.  My friends are alway saying – how do you do it? How are you so disciplined? Here is the secret – for 20 years I couldn’t.  I always remember on the operating table saying to myself if this thing works, I am going to be called an athlete one day, I am going to be able to jog, I am going to be able to spin..I am not going to take this science for granted.  And I never did.  The big realization I have had on this journey is when you have an opportunity, a miracle, a gift whatever it is, cherish it, bask in the glow of the gift, BUT don’t take it for granted.

Remember how in my last post I said I wake up scared everyday thinking about bootcamp.  The BIG secret is I am scared everyday thinking about losing this miracle.  I am not taking a day for granted.  I am not taking life for granted.  I am not taking my life for granted every again. I am not perfect though, I fall off this philosophy every now and then but you know what, that’s okay.  Everyone has their bad days, but I decided in 2015 I am going to make someone smile everyday, because their smile would light me up and remind me everyday is a miracle.

To smiling once a day and remembering how lucky we are Dystonia or not!


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