Tag Archives: sister

November 21, 2010

Family, sisters, Dystonia.

This week I went on a cruise with my entire family to the Caribbean.  My sister and I share more than just the same parents, we also share a common disease – Dystonia.  We may both have Dystonia, but we have very different lives.  The DBS has been successful, but I can publicly admit, my success has been better.  I forgot after almost 5 years of running how lucky I am and this week as I walked with my sister, I remembered the old days, the days when I was passed by, too afraid to try anything because I was embarrassed or thought I couldn’t do adventurous things…This wasn’t going to happen to Suzie on this trip…I made sure that we did stuff that she knew she could do, maybe with the help of big sis…

I am so proud of Suzie, she didn’t let the Dystonia scare her from being adventurous-she ziplined in a forest in mexico, swam with dolphins in cozumel and worked out with me!  She owned her life this trip, she had fun, we tackled all obstacles as a team….when the ship was ready to leave, I took control and got us a tram because she was tired…Always remember, sometimes 5 minutes in your day or a week to help someone..a helping hand or a simple “you can do this”…can make a world of difference and help someone feel “normal” … creating a lifetime of memories…