March 22, 2014

photo (15)Heroes…

Happy Bday to my wonderful sister, who has like me a rare genetic disease, though younger she has accepted our friend so much more than me.  So to the bravest girl in the world, Happy Bday!

Date for my surgery has been set and although I am relieved the next 20 days are going to be tough.  I am going to have to brush off the cane, I am going to have to retire the running shoes and I am going to be sleeping alot more.  I am relieved to know that all of this will be fixed very soon but it doesn’t make the interim any easier.  Walking is becoming more tedious, it makes me scared being reminded of a life I used to have.  It haunts me in my dreams that the next battery won’t work…but I do see the finish line, and I have to admit this feels like the last 2 miles of a marathon when I want to give up and I know I just have to put one foot in front of the other.  I have been on this journey for almost 8 years and even though I have been through many highs and lows, I have to say I would do it again in a heartbeat.  So I am not giving up, I may be a little twisted more than before but with the miracles of science I should be back to normal soon.

Thanks to my little sister for inspiring me to have the DBS surgery and being my constant advocate on days when I can’t, I love you more than you will ever know.

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